Many people do not know that Sickle cell can cause stroke in children as young as 2 and up to the age of 16 years old.
The statistics is alarming yet ignorance is still bliss.
It happened to me. My son Daniel who is now 17 has Sickle cell and has survived 5 major strokes his first was at 6 years old. That’s when I discovered that help and support was very limited especially after a child has had a stroke, numerous difficulties arose in linking services together, getting used to monthly blood transfusions, education understanding a child with complex needs and so many other difficulties that parents/carers face.
So, with other parents who were eager to learn from my experience, SCYSS finally opened it doors to the community on 1st June 2005. Our first client walked in off the street that same morning. This proved to me that God was smiling down on us.
Almost 9 years on we are still here because we are the lifeline that parent/carers need in the community.
We advocate and give children and young people a voice that is seldom heard.
We are very proactive in the area of childhood stroke and create more awareness about Sickle cell and childhood stroke link.
SCYSS is open to everyone, join us today to make a difference in the life of a young person.
We need more parents on board to speak about how it affects us and our children.
So if you can contribute in anyway, please contact us today 020 7277 2777
We are mainly volunteer led and need volunteers from all walks of life to help us in our day to day activities, whether its taking a young person out or giving parents the break they need when their child is in hospital or helping in our Saturday clubs or Tutorial classes to just going on one of our outings or meetings.
Your help is valuable either way, join us today.