Sickle Cell & Young Stroke Survivors (SCYSS) is a charity that supports children and young people affected by Sickle Cell Disease and Stroke.

Sickle Cell Disease is a genetic blood disorder that is associated with pain, silent strokes and other severe complications that affect the children’s everyday life and their learning ability.

It is worse when the child experiences strokes that affect their cognitive learning ability and mobility. There is no immediate cure for this chronic disease.

This organisation was founded by a parent who had to manoeuvre a lonely Stroke maze after her son suffered a massive stroke at the age of 6; this is one of the complications that can occur between the ages of 2 – 16 years. Many families with sickle cell sufferers and stroke survivors most times, do not know where to run to get support, seek advice or get needed information.

So what services do we offer?

-  Advice and Information

-  Saturday club / Playschemes / Music Clubs

-  Monthly Support Group for families (Meet last Friday of the month)

-  Health Promotions

-  Talks to groups

-  Counselling for children and Parents/Carers