Building Bridges, Breaking Stigma
How old do you have to be to suffer a stroke?
Of the 3500 babies born every year with sickle cell disease, 100 will suffer a stroke before their ninth birthday. Help us to help them.
Sickle Cell & Young Stroke Survivors (SCYSS) is a registered charity, that holistically supports children, young people and their families affected by sickle cell anaemia and childhood stroke.
It started as a support group in June 2005 but as the need grew, in September 2007, it became a registered charity.
Many people do not know that Sickle Cell can cause a stroke in children as young as 2 and up to the age of 16 years old.
Most times it leaves children with long-term disabilities in addition to their Sickle cell. It affects the whole families as extra hospital appointments and therapies are needed.
Many parents/carers find themselves having to make extra sacrifices to ensure their child has a better quality of life.
If you need to talk to someone please call 08000 842 809 or