Freephone: 08000 842 809

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Sickle Cell & Young Stroke Survivors (SCYSS) is a registered charity, that holistically supports children, young people and their families affected by sickle cell anaemia and childhood stroke.

It started as a support group in June 2005 but as the need grew, in September 2007, it became a registered charity.

Many people do not know that Sickle Cell can cause a stroke in children as young as 2 and up to the age of 16 years old. 

Most times it leaves children with long-term disabilities in addition to their Sickle cell. It affects the whole families as extra hospital appointments and therapies are needed.

Many parents/carers find themselves having to make extra sacrifices to ensure their child has a better quality of life.

Donate please


If you need to talk to someone please call  08000 842 809 or

Email to book a home visit. 

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