Many people do not know that sickle cell can cause stroke in children as young as 2 and up to the age of 16 years old. It happened to me. My son Daniel who is now 16 has sickle cell and has survived 5 major strokes.
I discovered that help and support was very limited especially after a child has had a stroke, numerous difficulties arise in linking services together, education do not understand what it means to integrate a child into mainstream education after a stroke and so many other difficulties that parent/Carers face. Therefore, with a team of other parents who were eager to learn from my experience, SCYSS finally opened it doors to the community on 1st June 2005. Our first client walked in off the street the same day the office opened. This proved to me that God was smiling down on us.
It has really been a positive and therapeutic venture for me, and there is so much we need to do about creating awareness in the community.