Many people do not know that Sickle cell can cause stroke in children as young as 2 and up to the age of 16 years old.
The statistics is alarming yet ignorance is still bliss.
It happened to me. My son Daniel who is now 17 has Sickle cell and has survived 5 major strokes his first was at 6 years old. That’s when I discovered that help and support was very limited especially after a child has had a stroke, numerous difficulties arose in linking services together, getting used to monthly blood transfusions, education understanding a child with complex needs and so many other difficulties that parents/carers face.
So, with other parents who were eager to learn from my experience, SCYSS finally opened it doors to the community on 1st June 2005. Our first client walked in off the street that same morning. This proved to me that God was smiling down on us.
It has really been a really hard as well as positive and therapeutic journey for me, and there is so much we need to do for our children that will help their wellbeing, self esteem and give them a voice as well as creating more awareness about Sickle cell and childhood stroke in the UK.
SCYSS is open to everyone, join us today to make a difference in the life of a young person, whether its taking a young person out or giving parents they break they need when their child is in hospital or helping in our Saturday clubs or Tutorial classes to just going on one of our outings or meetings. Your help is valuable either way, join us today.