Over 7000 children are currently living with Sickle cell Disorders in the UK.
Like any long term condition living with Sickle cell Anaemia can be challenging for the Children and young people living with it as well as their families.
Although there is often therapeutic support available it is offered in a hospitalised environment to the children and young people but seldom to the family as a whole.
Research has shown that therapy shared within the family environment can make coping with a long term condition easier for the family and build greater
understanding and a stronger ability to deal with other challenges within the family.
What is the Family Resilience programme?
Our Family Resilience provides the opportunity for families to come together to build their capacity to recover quickly from difficulties (resilience) that living with or having a child with Sickle cell anaemia presents.
It is also a great opportunity for families to get to meet other families in a fun and relaxed environment.
Who designed the Programme?
This programme has been jointly designed by Sickle Cell and Young Stroke Survivors (SCYSS) and Dr Kofi Anie a renowned Psychologist with extensive clinical experience in supporting children, young people, families and adults living with Sickle cell Disorders.
The programme comprises 4 half-day sessions over 4 Saturdays during September 2014 and will take place in a comfortable central London venue.
Dr Kofi Anie, expert therapists and expert parents will jointly deliver the programme.
What are the main areas the programme will cover?
Sickle cell and Psychological Education
Psychological coping Strategies
Maintaining Emotional Resilience
What are the benefits of joining this programme?
• Families will learn coping strategies
• Families will learn how to communicate better with each other
• Families will learn how to manage stress
• Families will learn relaxation techniques
• Families will learn about wider networks that enable greater resilience
• Families will gain better understanding of stigma and how it affects family dynamics and wider relationships
• Families will meet other families and network
Register here to take part in this project.