Go Karting event for boys, Register now

IMG-20130821-WA0003Date:  Tuesday , 12th August 2014 on – 9am to 1pm

Meeting point:  Hannibal House, Elephant and Castle, SE1 6TE

Want to test yourself around a grand prix track?! We’re offering a session in one of London’s best Go Karting arenas.

You will receive training on how to reach the best lap times, then there will be a timed Grand Prix to determine a winner.

Prizes and lunch will be provided.

To register an interest fill the form below:

Booking form for Outings and Activities

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Family Resilience program coming in September

Book your slot for our Family Resilience Course

Book your slot for our Family Resilience Course

Over 7000 children are currently living with Sickle  cell Disorders in the UK.
Like any long term condition living with Sickle cell Anaemia can be challenging for the Children and young people living with it as well as their families.
Although there is often therapeutic support available it is offered in a hospitalised environment to the children and young people but seldom to the family as a whole.
Research has shown that therapy shared within the family environment can make coping with a long term condition easier for the family and build greater
understanding and a stronger ability to deal with other challenges within the family.

What is the Family Resilience programme?

Our Family Resilience provides the opportunity for families to come together to build their capacity to recover quickly from difficulties (resilience) that living with or having a child with Sickle cell anaemia presents.
It is also a great opportunity for families to get to meet other families in a fun and relaxed environment.
Who designed the Programme?
This programme has been jointly designed by Sickle Cell and Young Stroke Survivors (SCYSS) and Dr Kofi Anie a renowned Psychologist with extensive clinical experience in supporting children, young people, families and adults living with Sickle cell Disorders.

The programme comprises 4 half-day sessions over 4 Saturdays during September 2014 and will take place in a comfortable central London venue.
Dr Kofi Anie, expert therapists and expert parents will jointly deliver the programme.

What are the main areas the programme will cover?

Sickle cell and Psychological Education
Psychological coping Strategies
Maintaining Emotional Resilience

What are the benefits of joining this programme?
• Families will learn coping strategies
• Families will learn how to communicate better with each other
• Families will learn how to manage stress
• Families will learn relaxation techniques
• Families will learn about wider networks that enable greater resilience
• Families will gain better understanding of stigma and how it affects family dynamics and wider relationships
• Families will meet other families and network

This project is funded by PrintRoald Dahl’s Marvellous Children’s Charity

Register here to take part in this project.





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New support for Parent Carers


Mrs Belkisu Mohammed Joins SCYSS


Sickle cell and Young Stroke Survivors welcomes Belkisu as a Volunteer to our team.

Bel has two children living with Sickle cell and is available to support other Parents and Carers.

Read more here – http://www.scyss.org/parentcarer-support/

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Being an Empathic advocate for children with health conditions Training

Register now for this upcoming course on the link below

Order tickets via Eventbrite:


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Advocacy Training for children and young people training

This gallery contains 5 photos.

In this day and age when the focus of our health is patient centered, who is training our young people on how to self- advocate? It is this questions that has prompted us to put together Enrichment training for children … Continue reading

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GCSE Classes begin after Easter

Education scyss 1

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SCYSS Youth Forum Event – Advocacy Training

In everything we do in SCYSS or goal is to empower the young people to have a voice, to be able to speak for themselves, to have confidence and to be able to ask questions.

This new training will not only empower them but show them where a lot of day to day decisions are made that impacts on the lives of those living in the UK today.

SCYSS Youth Advocacy poster

Book your space today as spaces are absolutely limited!

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Tutorial and Enrichment classes


SCYSS have started tutorial classes for 8 to 18 year olds.

If your child is struggling in school, needs extra help, is getting ready for GCSE, please register today.

We have an excellent set of teachers that will help your child catch up. There is a one off registration fee of £20 per term.

Register today, spaces are really limited.

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Register for SCYSS Training for Volunteers for 2014

SCYSS now has Training courses for Trustees and Volunteers and those interested in finding out what the charity is about.

Book today through Eventbrite brite, places are filling up fast.


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SCYSS Newsletter

SCYSS Newsletter August to September 2013Sickle cell and Young Stroke Survivors Newsletter Summer Edition

Click here Sickle cell and Young Stroke Survivors Newsletter Summer 2013 to read our Newsletter to find out what we have been up to and what we have planned.

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